I'm too smart for my own good. I don't mean as in I've cured RA for good brilliance (don't we wish). I'm not even smart in a way like my hubby whom despite also having 3 degrees, can get under the house with the best of them and figure out why our washing machine isn't working.
No, I'm smart in a really annoying way. I also hold two degrees; I'm no slouch, but I have this irksome observational intelligence. I notice details about people, places, situations, rooms, outfits, body language. You name it, I notice it...And then somehow, I file it in a part of my brain for future reference in some (apparently) neverending storehouse of details fileboxes.
So of course; what ends up happening are one of two things: Either I see things coming for miles bofore anyone else...which annoys me and them. Me, because it takes forever to get validation, and them b/c I'm always right. Or, the second kind...and this is the one that keeps me awake at night, requires an ambien script, and still wakes me up 2 hours later anyway. I notice things, things that are too "non-random" to be coincidental, but I DON'T know what they mean. Obviously, I'm not meant to. I mean, I've lived long enough to realize God reveals everything in time. Yet, why does he let me see these connections if he's going to make me wait so long to find out what they mean.
And here's a big example of what I mean. I've mentioned it to a couple of bloggers, and their answer was that maybe we copy each other...but I really don't think it is that. I mean, RA behaves differently, for each one of us. And yet...there are certain periods where I swear my RA is acting like a lot of yours. And it seems to be the same 10 core people. For instance, I just went through the best three weeks I've had in two years, and now I'm crashing hard. I could tell without it having to be confirmed that many of you were having more good days...because we were all too quiet.
And I remember a time when (even though I don't struggle with my hands so much as most; mine is more in the larger joints) I was having a really hard month with my hands. Three bloggers posted that same month, one even featured new gloves. RA Guy is one and Remicade Dream, and the three of us are roughly the same age. There are more, but I guess I just wanted to raise this awareness for those of you that haven't already seen it too.
But I swear to you, I stay up night TRYING to figure out, "Why now? What's different? What did we do/didn't do that we did last month?"
So this is what I KNOW. This RA thing has a pattern. It may be slightly different in all of us, but there ARE remit/pain cycles that are consistent across the board. If I can see it from my little house in the sticks, where are the scientists, the Einsteins, the brainiacs? They could use an Oprah a-ha moment if you ask me.
I do know some docs see it. I believe that is why many are starting to read our blogs. It may have started as a conversation with one dr., and then another. And then more patients reported something. Each time we think we're on to something, its only a piece. But as random as RA seems, there are times its not. So there is a bigger picture we're all overlooking.
And as God as my witness, if someone could figure it out, I'd empty this entire damn detail file in my brain, including the HORRID picture of my newest sister-in-law wearing a TIARA at her wedding. Really, Sweetie? A tiara? In your 30's? Damn details.